Home-based feeding therapy, why we love it.

Hello, it’s been awhile, and I would like to discuss our preferred therapuetic delivery model, home-based therapy.  Home-based therapy is rare, and for that reason deserves some explanation. Many types of feeding therapy can be delivered in the home, such as behavioral, speech and occupational therapy. Professionals who work with children in the home feel that this environment provides many advantages, and we do too. It may be difficult to secure approval for insurance funding outside the clinic, but we feel it can be worth the time and effort.

Therapy in the home can be consultative, or focused/intensive (not “intense”, just concentrated).  The consultation model typically involves the therapist coming to the home, observing a meal, deciding what needs to be done next, modeling the technique, having a caregiver practice the technique and giving feedback so the technique is used correctly.  Focused/intensive involves a 1-5 day visit, with the therapist working with the child for most of the time, developing a protocol, and then training caregivers.   The focused, home-based model allows for multiple practice opportunites, the ability to make a great deal of progress in a relatively short amount of time, training of multiple caregivers and across multiple environments such as home, school and restaurants.  Clearly, this focused/intensive model can only be accomplished at home or a clinic.     This is a huge benefit of home-based treatment, the ability to offer a more focused therapuetic experience.  This can also be accomplished in a clinic, but for reasons about to be discussed, home-based can often be a great choice. 

First, your child will feel more comfortable in their own home, especially if they have a negative feeding history and are fearful of offices and hospitals. In between meals, they can play with their own toys, spend time with their loved ones, take naps, go to Dr. appointments etc. Therapy is associated with fun, not just the hard work of learning to eat.  Another benefit is financial.  Clinical settings, such as hospital programs, require familes to travel if they don’t live in the area.  Home-based therapy allows both parents to continue working.   You do not have to take weeks off of work to relocate temporarily to where is the hospital is located.  Plane tickets and hotel fees are not an issue as therapy takes place in the families home and the therapist comes to you.  Another very important benefit is maintenance.  This is true with the focused or consultative approach.  This means that the child learns to eat at home, and will continue to do so even after therapy is over and the therapist leaves.  Just because a child can eat in a clinic does not mean they will go home and do so.  When therapy occurs in your home, with your food, your dishes and with “real life” going on, your child is more likely to continue to eat well after the therapist leaves.  You also learn how manage meals with your other children/pets/husband/wife/nanny/mom/plumber in the picture, which isn’t always easy!  The therapist can brainstorm ways to manage the complexities of your unique life.

Of course, there are benefits to clinic programs as well as office visits.  With very young children, under 18 months, a focused program may not be appropriate and a weekly visit at home or the therapists office is best.   If your child has complex medical issues, a hospital setting is necessary and the best approach.  In a clinic or office, other professionals are nearby and can consult on a moments notice.  Insurance companies are also more likely to fund such programs.  In any case-follow-up is crucial and should be conducted on a weekly or monthly basis for an hour or so per visit. 

Again, this approach is rare, and funding can be difficult.  Some insurance companies are catching on and will pay for this model.  If your child has an autism spectrum disorder, insurance funding may be easier to secure.  Some programs will offer discounts and payment plans for private-pay families.  The cost of private pay can offset the need to take time off of work and pay for plane tickets.

Whatever you decide, before starting a feeding program, we recommend speaking with families who have been through it themselves.  Have you been through feeding therapy before?  What is your experience and perspective regarding clinic-based, home-based and the consultative approaches?  Please comment below, we would love to hear about your experience.

Our next topics will include the use of appetite stimulants and picky eating.  Do you have a question or topic you would like addressed?  Please comment below and we will do our best to discuss it soon.

My best,

Jennifer

I tried this already, and it didn’t work!

Hello again!  Before you read the next entry, we want to explain how this blog is organized.  We would love to just jump right into techniques and tips, the fun stuff.  However, we believe it is important to give some background about how the type of therapy we provide works and to provide a good foundation for future reading.  Therefore, our next topic is…

 All about “I’ve already done this and it didn’t work/stopped working/just works a little and I don’t think we are getting anywhere….

 Most of you have been through some form of feeding therapy or treatment before finding this blog.  You have probably tried it all.  Appetite stimulants, playing with food, food chaining, rewards, pressure, no pressure, oral motor practice, letting your child cook the food, books about food, songs about food, the SOS approach, a “behavior approach”, letting them watch you eat, letting them eat alone, grandma’s best recipe and the list goes on.  We love and use many of these techniques.  When we begin to work with a child, what ends up “clicking” and becoming the final protocol is usually some variation or combination of techniques that have already been attempted.  The difference that will lead to success is how they are implemented, how they are combined with each other and when they are used.  At the end of a treatment visit, we often hear “but we tried that, and it didn’t work, it must be you.”  We would love to believe that we are magic, but the power is most often in the details, in the how and when.

 I just finished an initial treatment with a child who has been in weekly therapy for about a year.  After making good progress with oral motor skills, treatment became “stuck” and he just would not swallow the food.  After a frustrating first few hours of trying all the tricks in the book, which had been tried before, I did one of those things just a little bit differently.  This difference was based on my training in Psychology.  It worked, and after that everything fell into place and therapy was very, very successful.  After one 5-day visit, this child’s tube feeds were reduced by over 50%.

 So, before you give up on a strategy you have been taught (reducing expulsion or “spitting” purees for example”), here are some tips:

  1. Make the practice pleasant, turn on music or a video if they have a negative history with eating.
  2. Use proper seating (another topic) and use the “seat belt” on their chair so they are safe.
  3. Be systematic, just try one thing at a time and see if you notice any differences.
  4. Take data.  Quickly jot down whether they swallowed or spit each bite.  Over time, you may see a gradual improvement that wouldn’t be noticeable right away.
  5. Make sure you are not distracted, do not answer the phone or text message.
  6. Make it clear for your child when they have practiced the correct skills.  Stay neutral when the bite doesn’t go well, and give a reward when they improve. 
  7. Use consistent key words like “open” “swallow” and sound confident.
  8. Accept small improvements.  Start with small bites and gradually work upward when you have success.  Even a pea-sized bite is progress!  Start with ½ a pea if necessary.
  9. Before trying any of this, consult with your physician or therapist and ensure that your child is safe for oral feeding and can protect their airway! 
  10. Recognize when you need more help, and the weekly treatment model just may not be right for your child.  Many children excel with weekly outpatient therapy, some do not.  If your child has not made progress for years or even months, consider an in-patient program or an intensive home-based program.  They should be run by someone with extensive experience in feeding who will work with your Occupational Therapist, Speech Therapist, Dietitian and Gastroenterologist.  Always ask to speak with other parents who have been in the program. Ask around on feeding blogs and support groups to make sure the program has a good reputation, and to get a balanced opinion.  This is a website with a list of some programs:

 These concepts can be applied to many of the techniques you are currently trying.  Good luck, we will talk to you soon.

 Future topics: Why appetite stimulants don’t always work, and their role in feeding therapy; Different therapeutic models: pros & cons; Increasing acceptance of purees; home-based treatment

Welcome!

Hello,

Welcome to FeedingTherapyHelp, a blog started and maintained by us, Jennifer King and Nissa Goldberg.  We are Behavior Analysts with Master’s Degrees in Psychology, and extensive experience in pediatric feeding therapy.  On this blog, we are going to share tips for feeding your child, as well as our opinions regarding the best products,  and information related to childhood eating problems.  Since we have worked with children who are typically developing “picky eaters”, children with medical conditions and G-tubes, and children on the autism spectrum, there should be something for everyone.  We welcome comments from parents and practioners alike, and hope that you enjoy the content.  Check back every week or so for something new!

-Jennifer and Nissa